Advocacy Alert – Your Help is Needed!
Throughout our history, First Candle constituents have led the way in grassroots efforts to enact legislation as it relates to helping babies survive and thrive. We need your help once again!
Remember, personal stories are the catalyst behind success! Whether you are emailing, writing, calling or meeting locally with your House and Senate representatives (preferred), share your story.
There are three important pieces of legislation currently pending that need your support:
- The Sudden Unexpected Death Data Enhancement and Awareness Act (S.314/H.R.669)
This is the first and only federal legislation that holds promise of collecting comprehensive and consistent data on thousands of babies who die each year inexplicably to stillbirth and sudden unexpected death in infancy and childhood (SIDS/SUID/SUDC).
Sadly, we learned recently of the passing of Senator Frank Lautenberg (D-NJ). As the lead sponsor of this bill in the last two legislative sessions and its reintroduction in February of this year, Lautenberg was a true advocate for our nation’s most precious resource – our children.
In his memory, let’s continue the fight to get these bills through committee and signed into law this year!
- The Stillbirth Awareness and Research Act of 2013 (H.R.2365)
Currently there is no standard federal definition of stillbirth nor is there a standard protocol for the collection of stillbirth data, making any comprehensive research effort into the causes and prevention of stillbirth nearly impossible. These parents and their babies deserve more.
This bill was introduced by Congressman Peter King (R-NY) and addresses all of the problems with current stillbirth data collection methods and a lack of public awareness. Representative Michael McCaul (R-TX) has signed on as a lead co-sponsor.
- Parental Bereavement Leave – The Farley-Kluger Initiative to Amend the Family and Medical Leave Act (FMLA)
The issue with the current FMLA is that it does not extend benefits to employees who have experienced the death of a child. Initiated by Kelly Farley, founder of the Grieving Dads Project (www.grievingdads.com) and Barry Kluger, author and grieving father, the goal is to modify the existing FMLA to expand coverage and existing benefits to employees experiencing the death of a child.
Thank you so much for supporting our efforts . . .because every baby deserves a first birthday!