Centering Corporation & Grief Digest Magazine | The Centering Corporation is a non-profit organization dedicated to providing education and resources for the bereaved. Today we have over 100 books and for children and adults, My Friends Emotion Dolls, a Memory Bag for children, five videos and caring cards, plus over 200 books and resources from other publishers. We continue to provide educational offerings and workshops for caregivers and families.
Crisis, Grief and Healing | A place men and women can browse to understand and honor the many different paths to heal strong emotions. Author, speaker, and psychotherapist Tom Golden, LCSW provides this page. He has a section on the different way men and women grieve.
GriefNet | GriefNet.org is an Internet community of persons dealing with grief, death, and major loss.
Grief Watch | Site was created to provide bereavement resources, memorial products and links that can help you through your personal loss. It also serves as an excellent educational tool for all who travel down the road of grief.
Holy Pee Stick, Batman | A mother’s blog on her pregnancy, natural childbirth, infant loss journey (and beyond)
Miscarriage Matters, Inc. | Our national and international team is here to provide support to the survivors of miscarriage, stillbirth and early infant loss, while increasing awareness around these devastating and heartbreaking issues
Babyloss.com | UK | Babyloss is a UK-based resource that provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. The organization was established in 2000, and is run by a small team of volunteer administrators and forum moderators.
BabySteps | The BabySteps Children’s Fund is a non-profit organization offering information and support to bereaved parents and children suffering the loss of a child. This site has a Bereavement Sharing Room, Remembrance Rooms for the Bereaved – places to put up memories of loved ones that are no longer with us, and Bereavement Resource Rooms. They have a really good list of Dos and Don’ts for what to say and not to say to someone who’s baby has died.
Birth Stories | Compare notes with other parents-to-be and parents, read stories that are similar to yours or are very different than yours, share your own story and connect with others! This site Has more than 100 personal stories people have written about losing their first baby; and has more than 50 personal stories of people having their first baby after their loss (subsequent pregnancy after loss).
The Compassionate Friends | International | The Compassionate Friends, Inc. (TCF) is an international self-help, mutual assistance organization offering friendship, support and understanding to any parent who has experienced the death of a child, no matter what the age (infancy through adult) or cause of their death. There are chapters throughout the US as well as several other countries.
EriChad Grief Support | Grieving the loss of a child is one of life’s most difficult experiences. You may think you’ll never survive such pain. EriChad can’t take away your pain, but we hope to validate it, hold your hand, and help you find life’s rainbow.
GRACE Group for Pregnancy & Infant Loss | For individuals who have experienced pregnancy or infant loss from early losses up to a year after a baby is born. This includes: ectopic, molar, miscarriage, stillbirth, neonatal death, SIDS and birth defects. This GRACE Group is moderated by The Missing GRACE Organization staff and volunteers.
Growth House | This is the Growth House web site area dealing with grief related to pregnancy and infant death. This award-winning web site is an international gateway to resources for life-threatening illness and end of life issues.
HAND (Helping After Neonatal Death) | Grief support and information for parents and relatives of those who’ve lost a child before, during or after pregnancy, through stillborn, miscarriage, SIDS, or other causes. We are a non-profit organization based in Northern California and the Central Valley. Information for medical professionals is also provided.
Holy Pee Stick, Batman! | A mother’s blog on her pregnancy, natural childbirth, infant loss journey (and beyond)
Hygeia Foundation | An Online Journal for Pregnancy and Neonatal Loss: A New Resource for Women’s Health and Healing. Hygeia is devoted to the subject matter of grieving and loss as it pertains to pregnancy loss, genetic complications, miscarriage, neonatal loss and other life-threatening illnesses.
March of Dimes | Free bereavement materials for families that have experienced the loss of a baby before or shortly after birth.
M.I.S.S. Foundation | The MISS Foundation is a 501(c)3, volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.
RBaby Real Stories | RBaby Real Stories gives parents and family members an opportunity to share personal stories, photos and videos that commemorate the life of their baby or child, while also educating others about their specific experiences that may help care for families in the future. Learn more about the RBaby Foundation and their important mission to ensure quality pediatric emergency care for all babies.
SANDS Australia (Stillbirth & Neonatal Death Support) | Australia | SANDS Australia is a voluntary self-help organization comprised in the main, of parents who have experienced the death of a baby through miscarriage, stillbirth, or within days of birth.
SANDS UK (Stillbirth and Neonatal Death Charity) | UK | SANDS is a self-help organization in the United Kingdom with a network of over 200 groups and contacts. Their purpose is to befriend and support bereaved parents and their families, who have suffered a stillbirth or neonatal death. Their concern is to help any bereaved parent who gets in touch and to improve services for all bereaved parents, their family and friends.
Share Pregnancy & Infant Loss Support Inc. | The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. (800) 821-6819
Three Little Angels Foundation | Founded after the premature delivery and death of our triplets, we work to help educate nurses and hospital staff from a parent’s perspective on loss how to help us, and also give kits to families to help them make memories with their babies in the hospital before saying goodbye. We also have enormous resource listings on our website.
UNITE, Inc. | They provide grief support services to families following the loss of their baby due to stillbirth, miscarriage, ectopic pregnancy and early infant death. They are located in the Philadelphia, PA area.
Angel Whispers | Canada | Angel Whispers is a Canadian non-profit group that provides support to families who have experienced the loss of a baby shortly after birth or during pregnancy. Subsequent pregnancy support is also provided. Services include: quarterly newsletter, birth certificates, support groups, care packages and email support.
Babyloss.com | UK | Babyloss is a UK-based resource that provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. The organization was established in 2000, and is run by a small team of volunteer administrators and forum moderators.
Birth Stories | Compare notes with other parents-to-be and parents, read stories that are similar to yours or are very different than yours, share your own story and connect with others! This site Has more than 100 personal stories people have written about losing their first baby; and has more than 50 personal stories of people having their first baby after their loss (subsequent pregnancy after loss).
Born Angels | Internet-based Pregnancy and Neonatal Loss Support Center providing pregnancy loss support, infertility support, neonatal loss support, and adoption resources. Write a tribute in memory of your Angel, and post on message board for support.
GRACE Group for Pregnancy & Infant Loss | For individuals who have experienced pregnancy or infant loss from early losses up to a year after a baby is born. This includes: ectopic, molar, miscarriage, stillbirth, neonatal death, SIDS and birth defects. This GRACE Group is moderated by The Missing GRACE Organization staff and volunteers.
Growth House | This is the Growth House web site area dealing with grief related to pregnancy and infant death. This award-winning web site is an international gateway to resources for life-threatening illness and end of life issues.
HAND (Helping After Neonatal Death) | Grief support and information for parents and relatives of those who’ve lost a child before, during or after pregnancy, through stillborn, miscarriage, SIDS, or other causes. We are a non-profit organization based in Northern California and the Central Valley. Information for medical professionals is also provided.
Hygeia Foundation | An Online Journal for Pregnancy and Neonatal Loss: A New Resource for Women’s Health and Healing. Hygeia is devoted to the subject matter of grieving and loss as it pertains to pregnancy loss, genetic complications, miscarriage, neonatal loss and other life-threatening illnesses.
International Stillbirth Alliance | Promotes awareness and research to prevent stillbirth. Their mission is to raise public awareness of stillbirth, to educate the community on recommended precautionary practices and to facilitate research on the prevention of stillbirth.
Journeys: Stories of Pregnancy After Loss | author Amy Abbey
March of Dimes | Free bereavement materials for families that have experienced the loss of a baby before or shortly after birth.
M.I.S.S. Foundation | The MISS Foundation is a 501(c)3, volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.
MOMStudy | The goal of the Maternal Observations and Memories of Stillbirth (MOMS) study is to collect data that will help researchers, medical professionals, and women better understand all kinds of stillbirths and how to prevent them. This data also will provide those in the helping and counseling professions with insights on offering compassionate support to stillbirth families. Many researchers believe that most of the four million stillbirths women experience worldwide every year do not have to happen. Dealing with Stillbirth is a tremendous challenge, MOMStudy is a great resource for help.
The National Stillbirth Society | Fighting to stamp out S.A.D.S. – because all of our children matter. The mission of the parent-led National Stillbirth Society is to “educate and agitate” for greater stillbirth awareness, research and reform. Dealing with Stillbirth and its tremendous implications to parents is the Society’s overreaching goal.
Nationwide “Missing Angels Bill” Petition | (authored by John Nevels, II) Those members or individuals looking to get Missing Angels Bills enacted in their states are encouraged to refer to this petition in corresponding with State Representatives, Senators, and Assembly persons.
RBaby Real Stories | RBaby Real Stories gives parents and family members an opportunity to share personal stories, photos and videos that commemorate the life of their baby or child, while also educating others about their specific experiences that may help care for families in the future. Learn more about the RBaby Foundation and their important mission to ensure quality pediatric emergency care for all babies.
SANDS Australia | Australia | SANDS Australia is a voluntary self-help organization comprised in the main, of parents who have experienced the death of a baby through miscarriage, stillbirth, or within days of birth.
SANDS UK (Stillbirth and Neonatal Death Charity) | UK | SANDS is a self-help organization in the United Kingdom with a network of over 200 groups and contacts. Their purpose is to befriend and support bereaved parents and their families, who have suffered a stillbirth or neonatal death. Their concern is to help any bereaved parent who gets in touch and to improve services for all bereaved parents, their family and friends.
Share Pregnancy & Infant Loss Support Inc. | The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. (800) 821-6819
SIDS Educational Services | English and Spanish versions of the SIDS & Infant Death Survival Guide and Dancing on the Moon.
SIDS Families | “This site is my personal work to make SIDS more bearable for the families whose child has died. Our family was devastated by SIDS in April 1999 when our 2 ½ month old son Jacob died. I began this website about 6 months after his death, to both give families a place to come together, and to commemorate the lives of the many babies who were victims of SIDS (Sudden Infant Death Syndrome).” – Lydia Alves
SIDS & Kids Australia | Australia | The National SIDS Council of Australia, trading as SIDS and Kids, is a high-profile and well-respected not-for-profit organisation that boasts an enviable history of success. It comprises a National Office based in Melbourne with the National Research and Programs Unit largely based in Canberra, and nine Member Organisations (MOs) based in the Northern Territory, Queensland, New South Wales, Hunter Region of NSW, ACT Region, Victoria, Tasmania, South Australia and Western Australia.
SIDS Network, Inc. | The Sudden Infant Death Syndrome Network is a charitable, not-for-profit, voluntary agency. Donations are greatly appreciated and necessary for carrying out the work of our organization.The Sudden Infant Death Syndrome Network, Inc. dedicated to eliminate Sudden Infant Death Syndrome through the support of SIDS research projects, provide support for those who have been touched by the tragedy of Sudden Infant Death Syndrome and raise public awareness of Sudden Infant Death Syndrome through education.
Stillborn Angels | Cherish your loved ones. Tell their story. Share the memories. Create a memorial website for your loved one.
Three Little Angels Foundation | Founded after the premature delivery and death of our triplets, we work to help educate nurses and hospital staff from a parent’s perspective on loss how to help us, and also give kits to families to help them make memories with their babies in the hospital before saying goodbye. We also have enormous resource listings on our website.
UNITE, Inc. | They provide grief support services to families following the loss of their baby due to stillbirth, miscarriage, ectopic pregnancy and early infant death. They are located in the Philadelphia, PA area.
Angel Whispers | Canada | Angel Whispers is a Canadian non-profit group that provides support to families who have experienced the loss of a baby shortly after birth or during pregnancy. Subsequent pregnancy support is also provided. Services include: quarterly newsletter, birth certificates, support groups, care packages and email support.
Babyloss.com | UK | Babyloss is a UK-based resource that provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. The organization was established in 2000, and is run by a small team of volunteer administrators and forum moderators.
Born Angels | Internet-based Pregnancy and Neonatal Loss Support Center providing pregnancy loss support, infertility support, neonatal loss support, and adoption resources. Write a tribute in memory of your Angel, and post on message board for support.
GRACE Group for Pregnancy & Infant Loss | For individuals who have experienced pregnancy or infant loss from early losses up to a year after a baby is born. This includes: ectopic, molar, miscarriage, stillbirth, neonatal death, SIDS and birth defects. This GRACE Group is moderated by The Missing GRACE Organization staff and volunteers.
Growth House | This is the Growth House web site area dealing with grief related to pregnancy and infant death. This award-winning web site is an international gateway to resources for life-threatening illness and end of life issues.
HAND (Helping After Neonatal Death) | Grief support and information for parents and relatives of those who’ve lost a child before, during or after pregnancy, through stillborn, miscarriage, SIDS, or other causes. We are a non-profit organization based in Northern California and the Central Valley. Information for medical professionals is also provided.
Hygeia Foundation | An Online Journal for Pregnancy and Neonatal Loss: A New Resource for Women’s Health and Healing. Hygeia is devoted to the subject matter of grieving and loss as it pertains to pregnancy loss, genetic complications, miscarriage, neonatal loss and other life-threatening illnesses.
Miscarriage Matters, Inc. Our national and international team is here to provide support to the survivors of miscarriage, stillbirth and early infant loss, while increasing awareness around these devastating and heartbreaking issues.
Miscarriage Matters, Inc. | Our national and international team is here to provide support to the survivors of miscarriage, stillbirth and early infant loss, while increasing awareness around these devastating and heartbreaking issues.
SANDS Australia | Australia | SANDS Australia is a voluntary self-help organization comprised in the main, of parents who have experienced the death of a baby through miscarriage, stillbirth, or within days of birth.
SANDS UK (Stillbirth and Neonatal Death Charity) | UK | SANDS is a self-help organization in the United Kingdom with a network of over 200 groups and contacts. Their purpose is to befriend and support bereaved parents and their families, who have suffered a stillbirth or neonatal death. Their concern is to help any bereaved parent who gets in touch and to improve services for all bereaved parents, their family and friends.
Share Pregnancy & Infant Loss Support Inc. | The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. (800) 821-6819
UNITE, Inc. | They provide grief support services to families following the loss of their baby due to stillbirth, miscarriage, ectopic pregnancy and early infant death. They are located in the Philadelphia, PA area.
Alive Alone | An organization for the education and charitable purposes to benefit bereaved parents, whose only child or all children are deceased, by providing a self-help network and publications to promote communication and healing, to assist in resolving their grief, and a means to reinvest their lives for a positive future.
The Triplet Connection | The Triplet Connenction is an international “network of caring and sharing for multiple birth families” which was founded in 1983. We have worked with over 35,000 expectant parents of triplets and higher-order multiple births. For expectant parents of triplets or more, we have a fantastic packet of information which helps parents know exactly what they’re up against, and specifically what they can do to enhance and promote the best possible outcomes to their pregnancies.
Twinless Twins Support Group International | We provide support for twins and other multiples who have lost their twin due to death or estrangement at any age. The unique aloneness we feel can best be understood by another twinless twin. You are not alone.
Alliance of Grandparents, A Support in Tragedy (AGAST) | International AGAST is an all volunteer organization dedicated to helping grandparents through the trauma, stress and grief after the loss of a grandchild. An internationally recognized non-profit (501(c)3) organization with peer contacts throughout the United States, and active grandparents in ten countries. Staffed entirely by volunteer grandparents, AGAST responds to “new” bereaved grandparents with information packets, personal contact, and remembrance cards.
BabySteps | The BabySteps Children’s Fund is a non-profit organization offering information and support to bereaved parents and children suffering the loss of a child. This site has a Bereavement Sharing Room, Remembrance Rooms for the Bereaved – places to put up memories of loved ones that are no longer with us, and Bereavement Resource Rooms. They have a really good list of Dos and Don’ts for what to say and not to say to someone who’s baby has died.
Brooke’s Place For Grieving Young People, Inc. | Indianapolis, IN support groups for young people and college age (age 3-20+) who have experienced the death of a parent, grandparent, aunt, uncle, cousin, sibling, friend or loved one.
National Children’s Bureau | UK | You can find details of open-access services for bereaved children in your area through this on-line Directory. The services in this Directory can be contacted for information, guidance and support by anyone caring for or working with a bereaved child or young person (i.e. a parent, teacher or GP) and, in most instances, by the bereaved child themselves.
KIDSAID.com | KIDSAID.com is a safe place for kids to help each other deal with grief and loss. It’s a place to deal with feelings in our e-mail support group, to share and view artwork and stories, and for parents and kids to ask questions and find answers. Companion site to GriefNet.org.
Winston’s Wish | UK | We provide support for bereaved children and young people up to the age of 18. Programs recognize how children experience grief. We therefore include time to have fun and for creative activities as well as time to focus on and work through more painful issues.
The American Child Photographers Charity Guild | This organization is a network of photographers offering services to terminally ill children and their families.
Heart Prints | Heartprints is a digital photo retouching service for families who have lost a baby through stillbirth or prematurity. Many parents are anxious to see the photos of their stillborn babies, only to have that anticipation turn to dismay when the photos simply do not depict the child they remember. Other parents find it difficult to share their pictures with friends and family, afraid of the reaction they may get. I can correct many esthetic issues that take away from the natural beauty of your child.
Now I Lay Me Down To Sleep | The Now I Lay Me Down to Sleep Foundation (NILMDTS) administers a network of more than 5,000 volunteer photographers in the United States and nineteen International countries. At a family’s request, a NILMDTS Affiliated Photographer will come to your hospital or hospice location and conduct a sensitive and private portrait session. The portraits are then professionally retouched and presented to the families on an archival DVD or CD that can be used to print portraits of their cherished baby.
American Association of Christian Counselors (AACC) | May be able to help you find a Christian counselor in your area.
Caleb Ministries | A Christian ministry offering help for women who have experienced infertility, miscarriage, stillbirth, early infant death, or are post-abortive.
Christian Association for Psychological Studies (CAPS) | May be able to help you find a Christian counselor in your area.
Hannah’s Prayer Ministries | Hannah’s Prayer desires to provide Christian based support and encouragement to couples around the world who are struggling with the pain of “fertility challenges” including infertility or the loss of a child at any time from conception through early infancy.
Healing Hearts for Bereaved Parents | “Dedicated to providing grief support and services to parents whose child has died. The volunteers at HEALING HEARTS are here to help. We have known the pain that the death of a child brings. We have struggled with and worked on our grief and finally have made peace with that grief. Our purpose is to offer understanding, suggestions for coping, support, friendship, and most of all hope to all bereaved parents. Parents who have lost a child as a result of miscarriage or stillbirth are equally welcome as those who have lost children to illness, accident or violence.”
Heavenly Treasure | A source of understanding, comfort and hope for anyone who has ever experienced grief.
Mommies Enduring Neonatal Death (M.E.N.D.) | M.E.N.D. is a non-profit corporation whose purpose is to reach out to those who have lost a child due to miscarriage, stillbirth or early infant death and offer a way to share experiences and information through meetings, the bi-monthly newsletter, and our Internet web site. They are based in Dallas/Fort worth and have chapters in NW Arkansas and Kansas.
Stepping Stones Discussion Forums | The participants of the forums are invited to post questions, share experiences, and offer helpful information and encouragement.
National Council of Jewish Women | Pregnancy Loss Support Program (PLSP) for Miscarriage, Stillbirth, and Newborn Death. PLSP volunteers offer nationwide telephone counseling and New York metropolitan area support groups to those who have experienced miscarriage, stillbirth or newborn death as well as to those who are pregnant after a loss.
CHD-Fathers | This is a list for the fathers of children with Congenital Heart Defects. Members: 25; Founded: Oct 30, 2002
CHD-UK | UK | Congenital Heart Defects affect 1 in every 100 babies that are born. In order to bring Families, Friends and Sufferers together, this list has been set up for families and sufferers of CHD within the United Kingdom . Here, you are free to discuss medical matters, concerns and ask questions of one another. This group is not affiliated with any other support group.
Heartland Hearts Angels | This support group targets Midwest families who have lost a child to Congenital Heart Disease (CHD.) Members “meet” and “talk” and learn to cope with their losses. Support and encouragement is shared among friends who really understand. To honor our Angels lives, HHA participates in and coordinates events that increase CHD awareness and raise CHD research funds. HHA maintains a restricted membership policy to protect its members. Therefore, an introduction must be made to the list owner before membership is approved. If you are LIVING with CHD, please see our sister site, Heartland Hearts.
HeartLine | UK | A voluntary organization set up to offer help and support to children with heart disorders and their families regardless of how slight or severe the condition may be.
Fatty Oxidation Disorders Family Support Group | The FOD Family Support Group’s ‘Communication Network’ is intended to be used as a resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for the sharing of ideas and concerns for those whose lives have been touched by a Fatty Oxidation Disorder.
Organic Acidemia Association | The Organic Acidemia Association is a volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.
American Academy of Pediatrics
Association of SIDS and Infant Mortality Program Professionals (ASIP) | (612) 813-6285
Consumer Protection Safety Commission
National Institutes of Child Health and Human Development
National SIDS Resource Center (NSRC) | (703) 821-8955 ext. 1249
Following is a state-by-state list of grief resources available for anyone affected by the death of a baby, whether during pregnancy or after birth.
Click on your state to see a list of grief resources in your area.
[Alabama], [Alaska], [Arizona], [Arkansas], [California], [Colorado], [Connecticut], [Delaware], [District of Columbia], [Florida], [Georgia], [Hawaii], [Idaho], [Illinois], [Indiana], [Iowa], [Kansas], [Kentucky], [Louisiana], [Maine], [Maryland], [Massachusetts], [Michigan], [Minnesota], [Mississippi], [Missouri], [Montana], [Nebraska], [Nevada], [New Hampshire],
[New Jersey], [New Mexico], [New York], [North Carolina], [North Dakota], [Ohio], [Oklahoma], [Oregon], [Pennsylvania], [Rhode Island], [South Carolina], [South Dakota], [Tennessee], [Texas], [Utah], [Vermont], [Virginia], [Washington], [West Virginia], [Wisconsin], [Wyoming]
Download the complete 2012 Resource Directory (PDF) >
Amy R. Stratton, BSN, RN
Region V Perinatal Director-FHS-ADPH
2119 East South Boulevard
Montgomery, AL 36116
work:334-286-2830
fax: 334-286-5415
cell: 256-239-0321
The Amelia Center
Valeri Cowart, MA, ALC
Group Counseling Coordinator
The Amelia Center
1513 4th Avenue South
Birmingham, AL 35233
205-638-7492 fax
Center for Loss in Multiple Birth (CLIMB)
Ms. Jean Kollantai
P.O. Box 91377
Anchorage, AK 99509
Phone: 907-222-5321
Email: climb@pobox.alaska.net
Website: www.climb-support.org
Mortality and Child Health Review at Epidemiology
MCH Coordinator
3601 C Street, Suite 540
Anchorage, AK 99524
Phone: (907) 269-8000
Fax: (907) 562-7802
Website: www.epi.hss.state.ak.us
Arizona Department of Health Services
Bureau of Women’s & Children’s
150 N. 18th Avenue, Suite 320
Phoenix, AZ 85007
Phone: (602) 542-1875
Fax: (602) 542-1843
Website: www.hs.state.az.us/cfhs/azcf/sids.htm
Services: Bereavement & Stillbirth support though the MISS Foundation.
Bereavement Services/RTS – Banner Desert Medical Center*
Suzanne Helzer RNC-OBRTS Bereavement Services Coordinator
Banner Desert Medical Center
Mesa, AZ 85202
Phone (480) 412-3595
Email: suzanne.helzer@bannerhealth.com
Foot Prints
Ms. Mina Rose
350 N. Wilmot
Tucson, AZ 85711
Phone: (520) 873-6590
Website: www.sierrabears.org
AGAST/the MISS Foundation
Sandra Graben
P.O. Box 5333
Peoria, AZ 85385
Phone: (623) 979-1000
Banner Desert Medical Center
M.E.N.D. – NW Arkansas*
Dr. April Morenton
1955 Montclair Avenue
Siloam Springs, AR 72761
Phone: (479) 238-4505
Website: www.mend.org
Arkansas Dept. of Health
Ms. Jackie Whitfield
SIDS Program Coordinator
4815 West Markham
Slot#H17
Little Rock, AR 72205
Phone: (501) 280-4756
Fax: (501) 280-4082
Email: jwhitfield@healthyarkansas.com
Services: bereavement support, provides a visit from a public health nurse. Pays for SIDS Autopsy with limited funds
Gwen Edelstein, RN, PNP, MPA
Program Director,
California Sudden Infant Death Syndrome Program
11344 Coloma Road, Suite 560
Gold River, CA 95670-6304
800-369-SIDS (7437) in CA Only
916-851-SIDS (7437)
FAX 916-851-5937
Empty Cradle
619-595-3887 San Diego, CA
SIDS Alliance of Northern California*
Ms. Lorie Gehrke
President
1547 Palos Verdes Mall, #301
Walnut Creek, CA 94597
Email: info@sidsnc.org
Website:www.sidsnc.org
HAND Support Groups
Helping after Neonatal Death*
Post Office Box 341
Los Gatos, CA 95031
Phone: 888-908-4263
Email: info@handonline.org
Website: www.handonline.org
Services: Telephone Grief Support, Grief Support and Subsequent Pregnancy Support meetings. They cover the Northern California counties of Santa Clara, Alameda, Contra Cost, and Stanislaus.
California Department of Health
Ms. Leona Shields
Nurse Consultant
1615 Capitol Ave, MS 8300
PO Box 997420
Sacramento, CA 99899-7420
Phone: (916) 650-0368
Fax: (916) 650-0304
Email: lshields@dhs.ca.gov
A New Normal ~ Child Loss Support Group
Rachel Strickland
Rancho Community Church
31300 Rancho Community Way
Temecula, CA 92592
(951) 303-6789
rstrickland41@gmail.com
Counties served:
Riverside and areas surrounding Temecula
Guild for Infant Survival ~ Inland Empire
(909) 838-1536 (San Bernardino County)
(951) 295-9217 (Riverside)
(951) 571-6259 (Riverside County)
Fax (951) 571-6262 (Riverside County)
sharon_lang@redlands.edu (San Bernardino County)
maureen.chavez@mvc.edu (Riverside County)
mcarrie1@hotmail.com (Riverside County)
Counties served:
Imperial/Riverside/San Bernardino including desert areas and surrounding cities
Guild for Infant Survival ~ Orange County
2130 E. Fourth Street, Suite 125
Santa Ana, CA 92705
PO Box 148
Tustin, CA 92781
(714) 973-8417 (Office)
(800) 247-4370 (Toll free 24 hour line within California)
Fax (714) 973-8429
gisoc@att.net
Once a month support meetings: 7 pm, the second Monday of each month at 2130 E. 4th Street Santa Ana, 92705. We have SIDS parents and professionals available to support you through your grief.
County served:
Orange
Guild for Infant Survival ~ San Diego County
SIDS Alliance Affiliate
Jeri Wilson, MSW, SIDS Parent/Guild President
Santee, CA 92071
(619) 448-6874
jeriellen3@cox.net
County served:
San Diego
Isabella’s Giraffe Club ~ Giant Hearts
Angela Amoroso and Drew Skinner
9920 Scripps Lake Drive, Suite 104
San Diego, CA 92131
(858) 449-6554 (Isabella’s Giraffe Club)
(858) 444-6464 (Angela)
(858) 775-4042 (Drew)
info@isabellasgiraffeclub.org
drewskinner014@yahoo.com (Drew)
angela@isabellasgiraffeclub.org (Angela)
Counties served:
San Diego/Riverside (Limited areas)
KIDS/SIDS
Family Support Group
841 Sierra Avenue
Clovis, CA 93612-1231
(559) 352-4159 (Torres)
(559) 299-9165 (Becker)
rtorres@inbox.com
dbecker485@sbcglobal.net
County served:
Fresno
KIDS/SIDS
Support System for the Central Valley
198 Northgate Drive, #101
Manteca, CA 95336
(209) 808-6680 c/o John Mack
badrat004@msn.com
Counties served:
Calaveras, Fresno, Inyo, Kern, Kings, Madera, Mariposa, Merced, San Joaquin, Stanislaus, Tulare, Tuolumne
Los Angeles County Grief Healing
Peer-Parent Support Group
Angel Hopson, PHN, SIDS Coordinator
Los Angeles County Department of Public Health
600 S. Commonwealth Ave., Suite 800, Los Angeles, CA 90005
ahopson@ph.lacounty.gov Counties served:
Los Angeles/Ventura/Orange
SIDS Alliance of Northern California
First Candle/SIDS Alliance Affiliate
1547 Palos Verdes Mall, Box 301
Walnut Creek, CA 94597-2228
info@sidsnc.org
Counties served:
Alameda/Butte/Colusa/Contra Costa/ Del Norte/Glenn/Humboldt/Lake/Lassen/Marin/ Mendocino/Modoc/Mono/Monterey/Napa/Plumas/ San Benito/San Francisco/San Mateo/ Santa Clara/Santa Cruz/Shasta/Sierra/Siskiyou/ Solano/Sonoma/Tehama/Trinity
SIDS Foundation
P.O. Box 2314
Benicia, CA 94510
(707) 745-0105
gayla@mindspring.com
County served:
Solano
SIDS Support of Sacramento
Laurie Mamola
Sacramento, CA 95831
(916) 427-6460
(916) 505-0349 ( Cell)
l.mamola@att.net
Counties served:
Alpine/Amador/El Dorado/ Nevada/Placer/Sacramento/Sutter/Yolo/Yuba
The Josephine DeMello SIDS Foundation
Gabriel and Yolanda DeMello
79 Daily Drive, #515
Camarillo, CA 93010
888-674-2999 (Toll free 24 hour phone line in CA only)
Fax (805) 265-5456
joeydemellofoundation@gmail.com
Counties served:
Los Angeles/Santa Barbara/San Luis Obispo/Ventura
Web Based ~ California SIDS Parent Support Group
Hosted by Colleen Ma, SIDS Parent, Orange County, CA.
This online web based support group is for CA parents and family members experiencing a SIDS loss or other sudden unexplained infant death. Stay connected, share news, photos, videos and more in a private setting.
Sangre de Cristo Hospice
Ms. Kathy Bueno
1207 S. Pueblo Boulevard Way
Pueblo, CO 81005
Phone: (719) 542-0032
Services: Bereavement, Stillbirth & Miscarriage Support. Bilingual Support. They cover all of Colorado
Colorado Department of Public Health and Environment
Christopher E. Urbina, MD, MPH
Executive Director and Chief Medical Officer
4300 Cherry Creek Drive South, A-5
Denver, CO 80246-1530
Phone: 303-692-2011
Fax: 303-691-7702
Email: Christopher.Urbina@state.co.us
Angel Eyes
425 South Cherry Street, Suite 560
Denver, CO 80246
Phone: (303) 320-7771
Fax: (303) 320-7827
Website: www.angeleyes.org
Services: Bereavement Support groups
SHARE
Marilyn Carpenter
2555 N. Chelton Road
Colorado Springs, CO 80909
Phone: (719) 429-7500
Fax: (719) 471-0403
SIDS Network, Inc.
Mr. Chuck Mihalko
Executive Manager
P.O. Box 520
Ledyard, CT 06339
Email: sidsnet1@sids-network.org
Website: http://sids-network.org
Delaware SIDS Affiliate*
Ms. Linda Hawthorne
President
17 Roselawn Ave.
Wilmington, DE 19805
Phone: (302) 996-0819
Fax: (302) 255-2273
Services: Parent Grief support
Child Development Watch
Northern Health Services
Barbara Akenhead RNC, MSN
285 Chapman rd Chopin Bldg suite 103
Newark DE 19702
Phone: (302) 995-8617/800-671-0050
Fax: (302) 995-8363
Email:barbara.akenhead@state.de.us
Services: Social work visitation & referral to support services, provides support to stillbirth &miscarriage families, has bilingual services & materials, and serves New Castle Co., Kent. Co.& Sussex Co.
Wendt Center for Loss and Healing
Ms. Beverly Jones
4201 Connecticut Ave. NW Suite 300
Washington, DC 20008
Phone: (202) 204-5016 (202) 204-5016
Email: info@wendtcenter.org
Website: www.Wendtcenter.org
DC Department of Health
Maternal & Family Health Administration
2700 MLK Avenue SE
Washington, DC 20032
Phone: (202) 442-9124
Florida SIDS Alliance*
4044 W Lake Mary Blvd Unit#104-209
Lake Mary, Florida 32746
Phone: 800-743-7352
Email: sidsfla@yahoo.com
Email: sidsloop@gmail.com
Florida Department of Health
Ms. Susan Potts
4052 Bald Cypress Way
HSFFM Bin #A-13
Tallahassee, FL 32399-1723
Phone: (850) 245-4465
Fax: (850) 245-4047
Email: susan_potts@doh.state.fl.us
Garrett’s Voice
Mrs. Allison Glover
Phone: (800) 221-7437
Email: allison@firstcandle.org
Services: Bereavement support, SIDS risk Reduction, training for the family, childcare providers for healthcare professional
Hawaii Dept. of Health
Family Health Division
Child Wellness Program
Ms. Angie Goodbody
741-A Sunset Avenue
Honolulu, HI 96816
Phone: 808-733-4056
Fax: 808-733-4055
Braedyn Joe Foundation
Mr. & Mrs. Joe Sandoval
16028 North 19th Street, Apt. #102
Nampa, ID 83687
Phone: (208) 230-0602
Email:BraedynJoeFoundation@yahoo.com
Services: Reburial Services and promoting community awareness. They work with late
miscarriage, stillbirth and any age child death in their area. They also do feet and hand castings.They have no support group but do have a resource guide to direct them to the proper place. This is in Southwest Idaho region. Canyon and Ada County
St. Lukes’s Meridian Medical Center
Labor & Delivery
Bereavement Committee
520 S. Eagle Road
Meridian, ID 83642
Phone: (208) 706-3160
Email: herreidm@slrmc.org
Services: Bilingual support
Idaho Department of Health & Welfare
Children & Family Services
590 West Washington Street
P.O. Box 83720
Boise, ID 83720
Phone: (208) 334-5690
SIDS of Illinois, Inc.
6010 Route 53, Suite A
Lisle, IL 60532
Toll Free 800.432.7437
Phone 630.541.3901
Fax 630.541.8246
Services: family, packet, newsletter, individual peer support, support groups, video/DVD support group for rural families, no stillbirth & miscarriage support, provides Spanish materials & services, covers state of IL.
Genetic program
SIDS/Infant Mortality Program
Nicki Woolverton
Illinois Department of Health
535 W. Jefferson St.
Springfield, IL 62761
Phone: (217) 557-2931
Fax: (217) 557-5396
Services: referral to local PHN in family’s county of residence, home visit for counseling &referral to support services, info on SIDS, grief & bereavement to parents via personal letter and packet. No stillbirth/miscarriage services, limited bilingual materials. Covers state of IL.
NeoFight*
Ms. Michie Sebree, RN
PO Box 17715
Indianapolis, IN 46217
Phone: (317) 446-3013
Email: info@neofight.org
Website: www.neofight.org
Services: Grief support, Education and outreach for Stillbirth, Miscarriage and SIDS
Indiana State Department of Health
Maternal & Child Health Services
Ms. Beth Johnson, Perinatal Consultant
2 North Meridian Street, Section 8-C
Indianapolis, IN 46204
Phone: (317) 233-1344
Fax: (317) 233-1300
Baby Works
Ms. Barbara Himes**
Coordinator
P.O. Box 47155
Indianapolis, IN 47155
Phone: (317) 725-3754
Fax: (317) 882-2366
Email: sidsbhimes@aol.com
SIDS Center of Indiana*
Mr. John Schutt
1810 Broad Ripple Avenue, #13
Indianapolis, IN 46220
Phone: 1-877-507-7437
Email: brewat@aol.com
Iowa SIDS Foundation
Ms. Patty Keeley
Executive Director
406 SW School St., Ste. 207
Ankeny, IA 50023
Phone: 515-965-7655
(toll free) 866-480-4741
Fax: 515-864-0286
Email: info@iowasids.org
Services: Bereavement support for SIDS and SUID
Kimberly Noble Piper
Executive Officer
Center for Congenital and Inherited Disorders
State Genetics Coordinator
Iowa Department of Public Health
321 E. 12th Street
Lucas State Office Building #530
Des Moines, Iowa 50319-0075
Fax 515-242-6013
Stephanie Trusty
Maternal Health Consultant
Iowa Department of Public Health
321 East 12th Street
Des Moines, IA 50319
Fax 242-6013
Stephanie.trusty@idph.iowa.gov
Kansas Dept. of Health Environment
Bureau of Family Health
Ms. Linda Kenney, Director
1000 SW Jackson Street, Suite 220
Topeka, KS 66612-1274
Phone: (785) 296-1310
Fax: (785) 296-6553
Email: lkenney@kdhe.state.ks.us
Website: www.kdhe.state.ks.us/c-f/healthy.html
Services: Refers to SIDS Network of Kansas
SIDS Network of Kansas, Inc.
Christy Schunn, LSCSW
Executive Director
1148 S. Hillside, Suite 10
Wichita, KS 67211
Phone: (316 682-1301
Fax: (316) 682-1274
Website: www.sidsks.org
Services: Statewide community education and grief support services for those affected by infant loss.
SIDS/Other Infant Death Network of KY
Ms. Robin Richardson
P.O. Box 186
Caneyville, KY 42721
Phone: 1-800-928-7437
Phone (270) 879-8008
Email: rrichardson@hotmail.com
Department of Public Health
Adult and Child Health Division
Child Fatality/Injury Prevention Coordinator
275 East Main Street, MS SHS2WC
Frankfort, KY 40621
Phone: (502) 564-3236 X 3857
Fax: (502) 564-8389
SIDS Support and Awareness Network of Louisiana*
Mrs. Elizabeth Trahan
Peer Contact
676 Maraist Road
Crowley, LA 70526
Phone: (337) 788-3767
Fax: (504) 578-6605
Louisiana Office of Public Health
Ms. Tracy Hubbard
SIDS Risk Reduction Coordinator
628 N. 4th Street
P.O. Box 3214
Baton Rouge, LA 70821
Phone: (225) 342-7805
Fax: (225) 342-2256
Email: thubbard@dhh.la.gov
Maine SIDS Foundation*
Mr. Roy Bagley
14 Charlonate Drive
Gray, ME 04039
Phone: (207) 657-2220
Cell: (207) 233-9323
Email: roybagley@yahoo.com
Maine Public Health Nursing
Mr. Dwight Littlefield
Program Coordinator
Dept. of Human Services
200 Main Street
Lewiston, ME 04240
Phone: (207) 287-9025
Fax: (207) 795-4536
Email: dwight.littlefield@maine.gov
Center for Infant and Child Loss
Ms. Latoya Bates
737 W. Lombard Street, Room 226
Baltimore, MD 21201-1585
Phone: (410)-706-5089 or 800-808-7437
Fax: (410) 706-0146
Email:jedwards@peds.umaryland.edu
Website:www.infantandchildloss.org
Services: Grief intervention for SIDS. Covers the state of Maryland
Greater Baltimore Medical Center (GBMC)
Nancy Campbell or Deborah Johnson
6569 North Charles Street
Towson, MD 21204
Phone: (443) 849-2308
Phone: (443) 849-2079
Services: Group meets on the 2nd Thursday of each month from 6:30pm-8:00pm. Please call to confirm location and time.
Harbor Hospital
3001 South Hanover Street
Baltimore, MD 21225
Amy Foy, Nursing Recruiter/Support Group Volunteer
Phone:(410) 350-2080
Services: Group meets every 2nd Tuesday of the month from 7:00pm -
8:30pm at The Life Resource Center in the library (across the
street from Harbor Hospital, Room A)
Holy Cross Hospital
Cubbi LaHood
1500 Forest Glen Road
Silver Spring, MD 20910
Maryland MISS Support Group
Phone: (301) 681-5784
Services: Group meets on the 1st of each month at 7:30 pm
Mercy Medical Center (Mercy Cares Program)
Kathleen Wagner
301 Saint Paul Place
Baltimore, MD 21201
Phone: (410) 332-9326
Services: Group only open to mothers who gave birth at Mercy.
Saint Joseph’s Hospital
7601 Osler Drive
Towson, MD 21204
Phone :( 410) 337-1109
Services: Group meets 1st Monday of each month at 7:00pm in the
Pastoral/Spiritual Care Department Conference room. Call to register (open to all).
Sinai Hospital
2401 West Belvedere Avenue
Baltimore, MD 21215
Phone :( 410) 601-5192
Services: Group held on the 1st Wednesday of each month at 7:00pm in the Weinberg building, Suite 105.
Upper Chesapeake Medical Center
500 Upper Chesapeake Drive
Bel Air, MD 21014
Phone :( 800) 515-0044
Services: Perinatal Bereavement Support Group – Miscarriage, stillbirth, and infant death.Group held on the 1st Wednesday of each month at 7:00pm in the Bel Air Room.
University of Maryland Medical Systems
Christine Shippen
Phone: (410) 328-0914
Services: For phone support or referrals.
Annapolis Area
Hospice of Prince George’s County
11700 Beltsville Drive, Suite 100
Beltsville, MD 20705
Phone: (301) 572-2489
Services: Hospice offers bereavement support services for a variety of need and concerns, including grief support groups.
Riva Trace Baptist Church
Anne O’Sullivan
2990 Riva Trace Parkway
Annapolis, MD 21407
Phone: (410) 863-8391 (410) 863-8391
Services: Group held 1st Monday of each month from 7:00pm – 8:30pm.
Treasures
Hospice of Frederick County
516 Trail Ave, Suite C
Frederick, MD 21701
Phone: (240) 566-3030
Email:lkinna@fmh.org
Email: dwatterson@fmh.org
Services: Six-week support for anyone who has experienced the death of a child through miscarriage, stillbirth, SIDS or any type of infant death, will meet Wednesdays.
Massachusetts
Massachusetts Center for SIDS
Ms. Mary McClain, Project Coordinator
One Boston Medical Center Place
Boston, MA 02118
Phone: (617) 414-7437
Fax: (617) 414-5555
Email: mary.mcclain@bmc.org
Hospice of the Good Shepherd
April Ely
Hospice Bereavement Coordinator
2042 Beacon Street
Newton, MA 02468
Phone: (617) 969-6130
Services: Several bereavement groups for adults and for children include groups for the loss of a spouse or parent; loss of a child or adult child; loss of an adult sibling; a children’s grief group exploring grief through art, writing, storytelling and talking with peers. Groups meet at various times.
Milford Regional Medical Center
Women’s Pavilion Conference Room, fourth floor
Phone: (508) 422-2273
Services: Families who have experienced the loss of a baby through miscarriage or fetal death meets the second Thursday of the month from 7 to 8:30 p.m.
Families Against SIDS Tragedies*
Mr. Mark Titus
34160 Little Mack
Clinton Township, MI 48035
Phone: (586) 790-2602 (586) 790-2602
Fax: (586) 792-1858
Email: mttoothguy@comcast.net
Tomorrow’s Child/Michigan SIDS
112 E. Allegan
Lansing, MI 48906
Phone: (517) 485-7437
Fax: (517) 485-0163
Email: info@tomorrowschildmi.org
Minnesota SID Center
Ms. Kathleen Fernbach
Director
Children’s Hospitals & Clinics
2525 Chicago Avenue South
Minneapolis, MN 55404
Phone: 800-732-3812
Fax: (612) 813-7344
Email: kathleen.fernbach@childrensmn.org
Website: www.childrensmn.org/sidcenter
Bittersweet*
Ms. Barb Schaack
2308 Skyline Drive
Bloomington, MN 55442
Phone: (952) 854-1997
Email: barbschaack@yahoo.com
A Place to Remember*
Mr. Calvin DeRuyter
1885 University Ave West, #110
St Paul, MN 55104
Phone: (651) 645-7045/ 800-631-0973
Fax: (651) 645-4780
Email: tn@aplacetoremember.com
Website: www.aplacetoremember.com
GRACE Support Groups are facilitated by and made available for individuals and couples who have journeyed through infant and pregnancy loss, infertility and adoption.
Missing GRACE Foundation Local Support Groups
Website: www.MissingGRACE.org.com
Coon Rapids GRACE Pregnancy & Infant Loss Support Group
Darlene M. Weber, RNC. RTSTC
Faith Lutheran Church Lounge
11115 Hanson Blvd.
Coon Rapids, MN 55443
Phone (763) 755-3530 (763) 755-3530
Services: Meets from: 6:30 to 8:30pm Third Monday of each month the group does an activity that is helpful for the grieving process. (Examples are: Scrap booking, crafts, having a guest speaker, candle light memorial service, etc.) The activity is decided by the group at the first Monday meeting in each month. Room location is not held in the Lounge on the third Monday meeting (second meeting of the month). Please check the evening’s schedule posted at the entrance of the church which has the room name/number listed for each activity. For more information about the Coon Rapids group contact: Mercy-Unity Hospital 763-757-4452 763-757-4452 Or Missing GRACE Foundation Candy McVicar, Founder and Executive director, 763-497-0709 763-497-0709 .
Maple Grove GRACE Support Group
Maple Grove Covenant Church
9350 Upland Lane
Maple Grove, MN 55369
Phone:(763) 494-3233 (763) 494-3233
Services: We meet in class room 7 on left side of building. Enter at front doors, go left down hallway. Light refreshments provided. The second Tuesday of each month the group does an activity that is helpful for the grieving process. (Examples are: Scrap booking, crafts, having a guest speaker, candle light memorial service, etc.)
Longville Area GRACE Pregnancy & Infant Loss Support Group
Melissa and Jason Gemmell
St Edwards Catholic Church
4905 State Highway 84,
Longville, MN 56655
Phone: (218) 363-2400 (218) 363-2400
please enters through the back entrance into the church hall.
Bradshaw Grief Resource Center Support Groups
Website: www.bradshawfuneral.com
several support groups offered through Bradshaw Grief Resource Center.
Mississippi SIDS Alliance*
Mrs. Cathy Files
P.O. Box 2170
Madison, MS 39130-2170
Phone: 877-471-7437 or (601)-859-8900
Email: mssids@jam.rr.com
Mississippi State Department of Health
Ms. LaQutia Cooper, SIDS Coordinator
570 East Woodrow Wilson
PO Box 1700
Jackson, MS 39215
Phone:(601) 576-7476 (601) 576-7476
Fax: (601) 576-7498
Email:lcooper@msdh.state.ms.us
SIDS Resources, Inc.*
Ms. Lori Ahrens
135 West Monroe
St. Louis, MO 63122
Phone: (314) 822-2323
Fax: (314) 822-2098
Email: lbehrens@sidsresources.org.
Website: www.sidsresources.org
Services the state if Missouri and surrounding counties in Kansas and Illinois.
Western Region SIDS Resources, Inc.*
Donna Jacobson
Program Coordinator
4051 Broadway
Kansas City, MO 64111
Phone: (913) 671-1818
Fax: (816) 753-6906
Email: djacobson@sidsresources.org
AMEND*
Ms. Maureen Connelly
4324 Berrywick Terrace
St. Louis, MO 63128
Phone: (314) 487-7582 (314) 487-7582
Email: amendgroup@charter.net
AMEND*
Ms. Martha Elise
1559 Ville Rosa
Hazelwood, MO 63042
Phone: (314) 291-0892
Email: Martha@amendgroup.com
SHARE National Office
Ms. Stephanie Grant
402 Jackson Street
St. Charles, MO 63301
1-800-821-6819 1-800-821-6819 or (636) 947-6164 (636) 947-6164
Fax: (636) 947-7486
Email:share@nationalshareoffice.com
Website:www.nationalshareoffice.com
Dept. of Public Health and Human Services
1400 Broadway
Cogswell Building, Room C314
Helena, MT 59620
Phone: (406) 444-3394
Fax: (406) 444-2606
Email:
Healing Hearts for Moms
Judy Peterson
Missoula, MT
Phone: (406) 549-8482
Services: support groups for mothers who have a child die. This group seeks to help Moms through the grief process and to move on with life. The group meets the third Monday of each month.
Share Pregnancy & Infant Loss Support of Gallatin County
Mary Jo or Heather
910 S. 6th Ave
Bozeman, MT 59715
Phone (406) 587-8309
Phone (406) 556-8585
Services: Group meets the 1st Tuesday of every month at 7:00 pm at Bozeman Deconess Chapel,915 Highland Blvd.
Nebraska SIDS Foundation*
3170 Arcadia Avenue
Omaha, NE 68111
Phone: (402) 935-1911 (402) 935-1911
Email:
Office of Family Health
Life Span Department
301 Centennial Mall South, 3rd Floor
Lincoln, NE 68509
Phone: (402) 471-0165
Fax: (402) 471-7049
Medical Consultant
Jo Malay, RN MPH
Bureau of Family Health Services
Nevada State Health Division
3427 Goni Road, Suite 108
Carson City, NV 89706
Phone: (775) 684-4250
Email: jmalay@health.nv.gov
Kathleen Ja Sook Bergquist, Ph.D.
University of Nevada
4505 Maryland Parkway, Room GUA 3136
Las Vegas, NV 89154-5032
Phone: (702) 895-2449
Services: private resource for therapy, counseling and grief support purposes as a Licensed Clinical Social Worker, does not take insurance.
New Hampshire SIDS Alliance*
Mr. Charlie Foote
13 Drew Road
Derry, NH 03038
Phone: (617) 828-4996
Email: declan4204@comcast.net
New Hampshire Affiliate
Louis Erf
P.O. Box 338
Wheare, NH 03281
Phone: 603-529-7107
Email: Louisa@ERFS.org
New Hampshire SIDS Program**
Ms. Audrey Knight, MSN, RN
NH Division of Public Health Services
29 Hazen Drive-Health & Welfare Building
Concord, NH 03301
Phone: (603) 271-4536 (603) 271-4536
Fax: (603) 271-4519
Email: aknight@dhhs.state.nh.us
Services: info & resources on SIDS & grief support, peer contact referral, no stillbirth or miscarriage services, limited bilingual materials, covers state of NH.
SIDS Center of New Jersey
Alissa Sandler
Hackensack Medical Center
30 Prospect Avenue
Hackensack, NJ 07604
Phone: 800-704-7437 or 201-996-5330
Fax: (201) 336-8794
Email: asandler@humed.com
SIDS Center of New Jersey
Dr. Thomas Hegyi
Dr. Barbara Ostfeld
Dr. Linda Esposito** – contact for referrals
One Robert Wood Johnson Place, Dept. of Pediatrics, MEB 312, 3rd Floor
New Brunswick, NJ 08903
Phone: 800-545-7437 800-545-7437
Fax: (732) 235-6609
Email: hegyith@umdnj.edu
Services: case management, telephone contact, individual, peer contact, groups, home
bereavement visits. Limited services for stillbirth or miscarriage families. Will make local
referrals. Services the state of NJ.
Remembering Our Babies
Lisa Brown
205 Pheasant Hollow Drive
Plainsboro, NJ 08536
Phone: (609) 275-0866 (609) 275-0866
Fax: (609) 275-0866
Email: basil1964@aol.com
New Mexico Grief Services Program
Mrs. Nancy Barickman
Grief Services Coord.
University of NM School of Medicine
Albuquerque, NM 87131-0001
Phone: (505) 272-5719 (505) 272-5719
Fax: (505) 272-0727
Email: nbarickman@salud.unm.edu
Krystal’s Wish Foundation for SIDS*
Ms. Nancy Rafter
35 Highland Road
Ulster Park, NY 12487
Phone: (845) 338-5654 (845) 338-5654
Fax: (845) 338-5780
Email: nrafter@hvc.rr.com
New York Sudden Infant and Child Death Resource Center Offices
Statewide & Lower Hudson Valley Regional Office
Marie Chandick, Director
Stony Brook University
School of Social Welfare, HSC, L2, Rm. 111
Stony Brook, NY 11794-8232
Phone: (631) 444-3690 (800)336-7437
Fax: (631) 444-6475
Email: marie.chandick@stonybrook.edu
Website: www.stonybrookmedicalcener.org/sids
Serving New York State: Statewide and Regional Offices provide family bereavement support, literature, referral to local groups. Limited services for miscarriage and stillbirth. New York City office has bilingual speakers.
New York City Regional Office
Peggy Regensburg, Regional Coordinator
Public Health Solutions, Inc.
421 East 26th Street, 13th Floor
New York, NY 10016
Phone: (212) 323-1425
Email:pregensenburg@healthsolution.org
Central New York Regional Office
Clemencia Molina, Regional Coordinator
REACH CNY, Inc.
1010 James Street
Syracuse, NY 13203
Phone: (315) 424-0009, ext. 108
Fax: (315) 478-1981
Email: cmolina@reachcny.org
Western New York Regional Office
Ms. Jan Walkden, Regional Coordinator
Family Help Center
60 Dingens Street
Buffalo, NY 14206
Phone: (716)822-0919
Fax: (716) 822-5079
Email: jwalkden@familyhelpcenter.net
Eastern New York Regional Office
Mary Whittredge, Regional Coordinator
Albany Medical College
Department of Pediatrics, MC88/A240A
47 New Scotland Avenue
Albany, NY 12208
Phone: (518) 262-5918
Fax: (518) 262-7237
Email: whittrm@mail.amc.edu
Sister Teresa Geigel
Phone: (631) 273-1110 (631) 273-1110
Speaks Spanish and English
Good Samaritan Hospital*
Ms. Pam Magi, RN
Coordinator Perinatal
255 Lafayette Ave.
Suffern, NY 10901
Phone: (845) 368-5297 (845) 368-5297
Fax: (845) 368-5463
Email: pmagi@tshs.org
Services: Support for families who have experienced the loss of a baby during
pregnancy/newborn loss/loss if a young child. (Stillbirth)
Westchester Self-Help Clearinghouse
Lenire Rosenbaum
845 N. Broadway
White Plains, NY 10603
Phone: (914) 661-0600 (914) 661-0600 x 308
Fax: (914) 761-5859
Email: LRosenbaum@wjcs.com
Guardian Angel Perinatal Support
Martha Weiss
88 Hampshire Drive
Farmingdale, NY 11735
Phone: (516) 249-8589 (516) 249-8589
Kinder Mourn, Inc.*
Ms. Kelly Hamilton
Clinical Director
1320 Harding Place
Charlotte, NC 28204
Phone: (704) 376-2580 (704) 376-2580
Fax: (704) 376-0149
Email: kelly@kindermourn.org
Website: www.kindermourn.org
Ms. Jean Sawyer, RNC, BSN, IBCLC
Lactation Consultant
Albemarle Hospital
P.O. Box 1587
Elizabeth City, NC 27909
Phone: (252) 384-4745 (252) 384-4745
Email: jsawyer@albermarlehealth.org
Harnett County Department of Public Health
Cristina Worthington, Grief Counselor
307 West Cornelius Harnett Blvd.
Lillington, NC 27546
Phone: (910) 814-6254, main number 910893-7550
SHARE Contact
7403 Stonecraft Park Drive
Charlotte, NC 28226
Phone: (704) 542-4700 (704) 542-4700
SHARE
Jean Batten
2000 W. First Street, Suite 510
Winston-Salem, NC 27104
Phone: (336) 748-9070 (336) 748-9070
North Dakota Department of Health
Division of Maternal & Child Health
600 East Boulevard Avenue, Dept. 301
Bismarck, ND 58505-0200
Phone: 701-328-2784
Fax: 701-328-1412
District Board of Health – Mahoning County*
Ms. Debbie Moss
Public Health Nurse
50 Westchester Drive
Youngstown, OH 44515
Phone: (330) 270-2856
Fax: (330) 270-2860
Email: dmoss@mahoning-health.org
SID Network of Ohio
Ms. Barbara Lattur
421 Graham Road, Suite H
Cuyahoga Falls, OH 44221
Phone: 800-477-7437; 330-929-9911
Fax: (330) 929-0593
Email: leslie@sidsohio.org
Website: www.sidsohio.org
Services: free info about the grieving process, referral & support services to SIDS families, no stillbirth/miscarriage services, no bilingual services or materials, covers the state of OH.
Ohio Department of Health
Child Fatality Review
Ms. Merrily Wholf, SIDS Program Coordinator
246 North High Street, 6th Floor
Columbus, OH 43215
Phone: (614) 728-0773
Fax: (614) 564-2442
Email: merrily.wholf@odh.ohio.govs
Oklahoma State Health Department
Ms. Julie Dillard, SIDS Coordinator
Maternal & Child Health Services
1000 NE 10th Street
Oklahoma City, OK 73117
Phone: (405) 271-9444x 56931
Fax: (405)-271-9202
Email: julied@health.ok.gov
Oregon Department of Human Services
Ms. Cynthia Ikatha, Public Nurse Consultant
800 NE Oregon Street, Suite 825
Portland, OR 97232
Phone: (971) 673-0254
Fax: (971) 673-0250
The Dougy Center
3909 SE 52nd Ave
Portland, OR 97206
Phone: (503) 775-5683
Fax: (503) 777-3097
Website: www.dougy.org
Brief Encounters
Pregnancy and Infant Loss
11570 S.W. Bruce Dr.
Beaverton, OR 97005
Phone: (503) 699-8006
The Compassionate Friends
Therese Goodrich
10501 SE Market Street
Portland, OR 97212
Phone: (503) 248-0102
Grief Assistance Program
Maternal, Child and Family Health
c/o Medical Examiner’s Office
321 University Ave.
Philadelphia, PA 19104
Ms. Sylvia Urrata, M.S.S
Phone: (215) 685-7448
Services: Crisis Support
Pennsylvania Department of Health
Bureau of Family Heath
Ms. Giselle Hallden
Health/Welfare Building, East Wing, 7th Floor 7th & Forester Streets Harrisburg, PA 17120
Phone: (717) 772-2762
Fax: (717) 772-0323
Email: ghallden@pa.gov
Website: www.health.state.pa.us
Services: grief & bereavement referrals, educational information & resources. Provides services to families who have experienced the death of an infant age 364 days or younger for any reason. Some bilingual materials. Covers state of PA.
St. Clair Hospital
1000 Bower Hill Road
Mt. Lebanon, PA 15243
Active pregnancy loss support service. It includes Hugs for Healing Hearts: A Pregnancy Loss Support Group and Hugs for Healing Hearts: Subsequent Pregnancy after a Loss support group. They meet on the second and third Monday of the month respectively. Free and open to Moms and Dads. 412-942-5882 or www.stclair.org for more information.
Cribs for Kids® National Infant Safe Sleep Initiative
Healing Hearts Infant Bereavement Resources
Eileen Carlins, MSW, LSW
Director of Support and Education
810 River Avenue, Suite 250
Pittsburgh, PA 15212
Phone: (888)721-2742 ext. 4
Fax: (412) 322-5686
Email: ecarlins@cribsforkids.org
Services: grief support, education and research
Canaan Baptist Church
Stepping Stones Bereavement Support Services for Adults
5430 Pulaski Avenue
Philadelphia, PA 19144
(215)848-6311
www.canaanbaptistchurch.org
Good Grief Center (GGC) for Bereavement Support
2717 Murray Avenue
Pittsburgh, PA 15217
(412)224-4700
www.goodgriefcenter.com
Highmark Caring Place, A center for Grieving Children, Adolescents and their Families:
Erie Region – (866)212-4673
Harrisburg Region – (866)613-4673
Pittsburgh Region – (888)224-4673
Warrendale/Cranberry Region – (888) 734-4073
Giselle Hallden | Public Health Program Administrator
Pennsylvania Department of Health | Bureau of Family Health
625 Forster Street | Harrisburg PA 17120
Phone: 717.772.2762 | Fax: 717.772.0323
www.health.state.pa.us
Fatality Review Program of Philadelphia
Ms. Sylvia Urrata
321 University Ave.
Philadelphia, PA 19104
Phone: (215) 685-7408
Fax: (215) 685-7592
Services: Home visits for families who lost babies
Jackie Souders
519 Saw Mill Road
Mechanicsburg, PA 17055
Phone: (717) 766-3824
New Drawing’s of the Grief Assistance
Christina Williams
321 University Ave
Philadelphia, PA 19104
Phone: (215) 685-7448
Email: williamsgap@aol.com
Kristi Bothur
Naomi’s Circle
Columbia, SC
(803) 665-4228
South Dakota Department of Heath
Ms. Nancy Shoup,
Program Coordinator
615 E. 4th Street
Pierre, SD 57501
Phone: 605-773-6286
Fax: 605-773-5509
Email: jenny.williams@state.sd.us
Services: Give information on Back to Sleep.
Lach’s Legacy
C/O Brianne Edwards
7360 Castlewood Dr
Summerset, SD. 57718
Phone: 605-716-1349
Email: LachsLegacy@gmail.com
Sanford Wellness Center
4201 South Oxobow Ave
Sioux Falls, SD 57106
Margie Rolfing, M.ED
Phone: (605) 336-3305
Services: This group discussion is open to any Mom or Dad experiencing infant loss.
Tennessee SIDS Alliance*
Ms. Lisa Hunt
7603 Moon Crest Ct.
Powell, TN 37849
Phone: (423) 947-6669
Home: (865) 938-9848
Email: huntklisa@comcast.net
Tennessee Department of Health
Rachel Heitmann, MS
Program Director, Child Fatality/SIDS/CLPPP/FIMR
425 5th Ave. North, CHB 4th Floor
Nashville, TN 37243
615-741-0368
Center for Infant and Child Loss
Katherine Ratcliff
Prevention/CFIL Director
c/o Any Baby Can, Inc.
217 Howard Street
San Antonio, TX 78212
Phone: 210/227-0530
800/524-3755 (Toll Free in Texas)
Fax: (210) 227-0812
Email:kratcliff@anybabycansa.org
Greater Houston Chapter SIDS Alliance*
Ms. Anita Carmona
916 Satsuma Street
Pasadena, TX 77506
Phone: (713) 924-1419
Email: anita.carmona@us.rhodia.com
M.E.N.D. – Mommies Enduring Neonatal Death*
Ms. Rebekah Mitchell, Founder
PO Box 1007
Coppell, TX 75019
Phone: 972-506-9000
Email: jaimie@mend.org
Southwest SIDS Research Institute
Mrs. Judy Henslee
Brazos port Memorial Hospital
100 Medical Drive, RM 220
Lake Jackson, TX 77566
Phone: (979) 299-2814
Fax: (979) 297-6682
Department of State Health Offices
Development Offices
Title V and Health Resources
Ms. Mary Chan McDermott,
Perinatal Coordinator
1100 West 49th Street, M355
Austin, TX 78756
Phone: (512) 458-7650
Fax: (512) 458-7711
Email: chan.mcdermott@dshs.state.tx.us
St. David’s Round Rock Medical Center
Rev. Amy Donohue-Adams
2400 Round Rock Ave
Round Rock, TX 78681
Phone: (512) 341-1391
EMAIL: AMY.DONOHUEADAMS@STDAVIDS.COM
Services: support/support groups in the areas of Austin/Round Rock/
Georgetown/Waco/Temple and central Texas areas.
Utah SIDS Alliance*
Lisa Hughes
1760 American Park Circle
West Valley City, UT 84119
Phone: (801) 261-4222
Email: utahsidsalliance@yahoo.com
Services: Support groups for parents who have had an infant die suddenly.
Alliance of Grandparents / M.I.S.S. Foundation
Ginny Shutt
210 East 400 South
Salt Lake City, UT 84111
Phone: (801) 964-9466
Phone: (801) 524-8411
Centro De La Familia
3780 S. West Temple
South Salt Lake City, UT 84115
Phone: (801) 521-4473
Fee: Based on your ability to pay.
Services: Bi-lingual grief counseling
The Sharing Place
1695 E 3300 South
Salt Lake City, UT 84106
Phone: (801) 466-6730
Website: www.thesharingplace.org
Services: Grief support for children and families.
Fee: Based on your ability to pay
Public Health, Health Services District Manager
90 Olin Dr.
Eden Mills, VT 05653
Phone: (802) 476-0161
Central Virginia Area
Facilitated by Tammy Forrest, RN/SIDS parent and Blaire Borum, SIDS sibling survivor.
Meetings are the second Tuesday of each month at 7pm at Amedisy’s Freedom Home Health.
21221 Patrick Henry Highway
Jetersville, VA 23038 (Amelia County)
please calls ahead to RSVP. For more information call Tammy at (434) 294-2361
.
Peninsula Area
For information contact Trudi Reynolds (757) 865-2561
Meetings are held at the Chesapeake Central Library, Conference Room B, 298
Cedar Road, Chesapeake, VA 23322
Monthly Meetings facilitated by Heather Kiegel.
For further information call (757) 923-
0367 or email heather.vasids@yahoo.com
Northern Virginia
SIDS Mid-Atlantic
Ms. Betty Connal
Executive Director
P.O. Box 799
Haymarket, VA 20168
Phone: (703) 955-6899
Fax: (703) 933-9101
Email: bconnal@aol.com
Website: www.sidsma.org
Services: peer support, support groups, newsletters, website, referrals, and special/memorial events. Stillbirth/miscarriage families welcome to attend groups but are referred to the local SHARE or MISS chapters. Have bilingual materials & refer out to bilingual grief therapists. Serve metro DC, including suburban MD & VA.
Fredericksburg
Tammy Ruiz, RN
21221 Patrick Henry Highway
Jetersville, VA 23038
Phone: (540) 741-3268
HopeXchange*
Ms. Lisa Church
26 Towne Centre Way, #731
Hampton, VA 23666
Phone: (757) 826-2162
Email: lisa@hopexchange.com
Website: www.hopexchange.com
Northwest Infant Survival and SIDS Alliance
(formerly SIDS Foundation of Washington)
Ms. Inga Paige, Executive Director
4649 Sunnyside Avenue North, Suite 350
Seattle, WA 98103
Phone: (800) 533-0376
Fax: (206) 548-9445
Website: www.nwsids.org
Services: Support for grieving families, safe sleep education for parents, caregivers and
professionals, and support for local SIDS research.
Washington State Department of Health
Ms. Bat-Sheva Stein, RNC MN
Public Health Nurse Consultant
Maternal & Child Health Office
111 Israel Road S.E.
Tidewater, WA 98504
Phone: (360) 236-3582
Fax: (360)-586-7868
Email: bat-sheva.stein@doh.wa.gov
Services: Links healthcare professional and consumers to resources. No direct services.
WV Statewide Birth scoring Program
Mr. Louis Morgan
Department of Pediatrics
Box 9214
Morgantown, WV 26506
Phone: (304) 293-7302
Fax: (304)293-5491
Email: lmorgan@hsc.wvu.edu
Infant Death Center
Children’s Health Alliance of Wisconsin
620 South 76th St. Suite 120
Milwaukee, WI 53201
Phone: (414) 292-4044
Fax: (414) 231-4972
Website: www.idcw.org
Department of Health and Family Services
Ms. Millie Jones
1 West Wilson Street, Room 243
Madison, WI 53703-0001
Phone: (608) 266-2684
Fax: (608) 267-3824
Email: jonesmj@bhff.state.wi.us
Wisconsin Stillbirth Service Program (WISSP)
Friends of Clinical Genetics
Ms. Elizabeth McPherson, MD,
Clinical Genetics Center
1000 N. Oak Ave
Marshfield, WI 54449
Phone: (715) 221-7409
Fax: (715) 389-4399
State of Wisconsin Department of Health Services
Kate Gillespie, RN, BSN
1 West Wilson Street
Madison, WI 53701
Phone: (608) 266-1538
Fax: (608) 267-3824
Email: kate.gillespie@dhs.wisconsin.gov
Wyoming Perinatal & Prevention
Stacy Dunn
Department of Health- Hathaway, 4th Floor
Cheyenne, WY 82002
Phone 
307) 777-7944
Email: sdunn@missc.state.wy.us
Wyoming Department of Health
Ms. Debra Hamilton, RN, MSN, CCM, CNLCP
Perinatal Systems Manager
Office of Woman’s Health Coordinator
Community & Family Health Section
6101 Yellowstone Road, suite 420
Cheyenne, WY 82002
Phone: (307) 777-7944
Fax: (307) 777-8687
Email: debra.hamilton@health.wyo.gov
National Resources
Bereaved Parents of the USA
Ms. Dave Alexander
Director of Board
P.O. Box 95
Park Forest, IL 60466
Phone: (708) 748-7866
Website: www.bereavedparentsusa.org
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