First Candle is pleased to announce that a leading medical journal, The Lancet, is launching a series of research articles focused on stillbirth as an “invisible public health problem”. The articles call attention to the staggering statistics that indicate more than 2.6 million stillbirth deaths occurs annually across the globe. In the United States alone, stillbirth devastates more than 25,000 families each year. First Candle is joining an esteemed team of international organizations to call attention to this groundbreaking research effort as part of our commitment to bringing stillbirth to the forefront as a leading cause of infant death.
This international effort is dedicated to providing research to stillbirth solutions and interventions. First Candle, The International Stillbirth Alliance, Global Alliance for Prevention of Prematurity and Stillbirth (GAPPS), National Institute of Child Health & Human Development (NICHD), the World Health Organization (WHO), UNICEF and Save the Children have all partnered to disseminate information regarding the launch. In addition, there is a long list of researchers diligently working on the final global stillbirth statistics for the Series. The publication represents the efforts of 67 co-authors from 50 organizations in 18 countries. A remarkable series of press conferences around the world has been orchestrated for April 13th and 14th in London, South Africa, Geneva, Florence, New York, Seattle, Australia, Canada to name a few.
About The Series: The Lancet’s Stillbirth Series provides the most comprehensive assessment to date of global numbers and causes of stillbirths, perceptions and beliefs around the world, and the solutions to prevent stillbirths—well-known interventions as well as innovations. This Series also includes a global call for action, key findings, and recommendations. Visit their website http://www.TheLancet.com.
About The Lancet: The Lancet publishes a weekly journal and three monthly specialty journals in the fields of oncology, neurology, and infectious diseases. All Lancet specialty journals have existed as both print and online medical journals since first published.
Please join us in spreading the word about the Lancet Series. This is an important step in the right direction and strengthens our ability to advocate for increased awareness and funding for issues related to stillbirth in hopes of a future where all babies survive and thrive.
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Update on the Stillbirth and SUID Prevention, Education and Awareness Act
First Candle, together with the CJ Foundation for SIDS, would like to update you on advocacy efforts related to S.1445 and H.R.3212 – the Stillbirth and SUID Prevention, Education and Awareness Act.
As of today, 27 members have joined Congressman Pallone as co-sponsors in the House and 11 Senators have joined Senator Lautenberg as co-sponsors in the Senate. The next step is for the bills to be reviewed in committee.
It is crucial for the bill to first gain widespread support of the members of these committees to move forward. With that goal in mind, two events are being planned:
Use the list below to see if your Senators or Representatives are members of these two committees. If they are, would you be willing to come to DC on May 18, 2010 and meet with them in their offices? Meeting face to face with families has been the most powerful tool in gaining support for the Stillbirth and SUID Prevention, Education and Awareness Act.
If you are interested, please contact Marian Sokol at email@example.com or Laura Crandall at firstname.lastname@example.org. We can provide guidance and support in coordinating with other families, scheduling meetings and preparing you for the meeting. These meetings should be initiated in the next week.
We thank you in advance for your support of this important effort.
Members of the Health Committee (House) and the Energy and Commerce Committee (Senate):
|House/Senate||First Name||Last Name||State||Co-Sponsor|
We are joining our friends at the C. J. Foundation for SIDS, to seek co-sponsors for S.1445 and H.R. 3212…the Stillbirth and SUID Prevention, Education and Awareness Act. This act is sponsored by D-NJ Senator Frank Lautenberg and Congressman Frank Pallone, Jr., and quite simply the single most promising piece of legislation crafted in the past decade to promote infant survival and address the sudden unexpected death of young children related to SIDS, SUID, SUDC and Stillbirth. An incredible amount of legislative staff time has been put into understanding the issues and defining ways in which we can reduce the risk for future families.
Nothing you can do today will have more meaning and prevent more tragic losses.
PLEASE CONTACT YOUR CONGRESSIONAL LEADERS IN THE HOUSE AND SENATE TODAY.
By clicking on the following link provided by the C.J. Foundation for SIDS, it will be easy to type in your zip code and automatically direct your letter to the appropriate congressional offices. You may personalize the letter or send the template as is.
My personal goal is to have a minimum of 81 co-sponsors by Mothers’ Day…equivalent to the number of babies who are stillborn plus the number of babies who die of Sudden Unexpected Infant or Child Death EVERY DAY here in the United States.
Won’t you please help?????????? Please do it in honor of the babies and children whom you love in your life.
Thanks from the bottom of my heart!!!
First Candle is pleased to announce that the Stillbirth and SUID Prevention, Education and Awareness Act of 2009 was filed on July 14 by Senator Frank Lautenberg, D-NJ. A companion bill was filed in the House by Frank Pallone, Jr., D-NJ-6. This bill will improve the collection of critical data to determine the causes of stillbirth, SIDS and SUID, increase education and awareness about how to prevent these tragedies in the future and expand support services for families who have experienced a stillbirth, SIDS or SUID loss.
Every year there are more than 25,000 stillbirths in the United States. For more than half these deaths there is no known cause, leaving parents with more questions than answers as to why the baby died. The bill would expand activities to identify the causes of stillbirth, identify ways to prevent it in the future and increase education and awareness about the issue among healthcare providers and parents.
In addition, there are more than 4,600 sudden unexpected infant deaths each year (including SIDS) and 200 sudden unexpected deaths of children between the ages of one and four. This bill encourages states to complete scene investigations to better understand why these children died, establishes a national database to track these deaths and identify risk factors to prevent them in the future, supports more comprehensive reviews and creates a national public awareness campaign to educate parents and caregivers.
We hope you will join us in supporting this legislation by contacting your representative in the House and two Senators, urging them to co-sponsor this important bill. The more co-sponsors the bill gets, the more likely it is to pass quickly through the House and Senate.
We encourage you to call your representatives directly, or set up an appointment to meet with them face-to-face. Writing a letter or sending an email can be effective as well. Emails can be sent directly through your representatives’ websites. We have provided a fact sheet about the bill, as well as a sample letter to help guide you.
Whether you are writing a letter or speaking with your representatives directly, be sure to include your personal story. First Candle would love to receive a copy of your letter or an email detailing your conversation with your representatives for our files. Please feel free to contact Laura Reno at 800-221-7437 x223 or email@example.com with any questions you may have.
Members of Congress rely on input from their constituents to help them better understand what issues are important to those they serve.
Help give our babies a voice.
Dear (insert name),
I am writing to ask your consideration in supporting critically-needed legislation that will help save babies’ lives. The Stillbirth and SUID Prevention, Education and Awareness Act of 2009 (S1445) was filed on July 14 by Senator Frank R. Lautenberg, D-NJ. A companion bill (HR3212) was filed in the House by Frank Pallone, Jr., D-NJ-6.
I urge you to sign on as a co-sponsor of this important bill which would help reduce the number of unexpected infant deaths in the United States by calling for new research and education on stillbirths and Sudden Unexpected Infant Death (SUID). Every year, there are more than 25,000 stillbirths and more than 4,600 sudden unexpected infant deaths in the United States. Specifically, this bill would improve the collection of critical data to determine the causes of theses tragic deaths, increase education and awareness about how to prevent these tragedies in the future and expand support services for families who have experienced a stillbirth or SUID loss.
This bill is important to me because (insert personal story here).
Thank you so much for your consideration of my request. By working together, we will be one step closer to a future where all babies survive and thrive. For your convenience, I have included a fact sheet on the bill.
If you have questions, or would like to sign on as a co-sponsor, please contact Veronica Valdivieso at Senator Lautenberg’s office at firstname.lastname@example.org or 202-224-3224.
In the belief that every baby should live,