First Candle applauds the courage of the special families that have chosen to share their stories, in hopes of sparing even one family the anguish of loosing a healthy, happy baby suddenly and unexpectedly. Our hearts go out to these families . . . they are a beacon of hope that lights a path in the darkness for all those devastated by the death of a precious baby.
“Our only daughter, Alexis Claire Martin, died of SIDS at the age of 6 1/2 weeks. She fell asleep by my side and never woke up. Her cradle, placed next to my bed, was where Alexis slept most of the time. That night, she was extremely fussy, so my husband slept in the other room. I was a little concerned she had a bad tummy ache, so I wanted her close to me.
“I fed her and laid her to rest on her back, right by my side. It was my responsibility to care for her and most of all, to protect her. I had heard of SIDS and the risk factors associated with SIDS, and at no time did I even consider that placing my daughter at my side could be dangerous or risky. I would never put my daughter in harm’s way — there were no pillows, excess blankets, stuffed animals or toys, just my daughter and me.
“I will never know if my motherly instinct, wanting to have my baby close to me, may have increased the risk of SIDS taking the life of my precious daughter, Alexis Claire.
“When my twins were born, the following year, after the late night feedings, exhausted, I would carry both of them back to their cribs to sleep, on their backs. I would stand watch over them, poking them gently if I couldn’t see their tummies moving up and down with every breath. The first year, I worried that they would die during their sleep, on my watch, and under my care.
“If I had to give advice to a new parent, I’d recommend room sharing and not bed sharing, just to be extra safe.”
– Margaret D’Arrigo-Martin, First Candle Board Member
Julian Jamaal Alexander was a happy, healthy 3 1/2 month old baby boy whose giggles and coos would melt the hearts of all that met him. On March 24, 2005, the Alexander family’s lives and dreams were shattered when his lifeless body was found laying peacefully between his mother and father.
For them, SIDS was not something they knew much about – and they certainly had not been warned about the importance of safe sleep in reducing the risk of SIDS and other accidental infant deaths. Bridgette and Jonathan Alexander, along with Julian’s grandmother Deborah Williams, are here today to share their story in the hope of sparing other families the devastation of loosing a precious child.
Simon Jeffrey Hunsberger was born on May 16th, 2005. He was a few weeks early, but there were no complications and he progressed through his first months with flying colors – laughing, giggling and otherwise entertaining his adoring family. The “family bed” was a common practice for Jeffrey Hunsberger and Michelle Legere, as it was for many of their peers.
There was never any indication from the literature they read or their physician that there was anything dangerous about sleeping with Simon in their bed.
Yet Simon died in his sleep on August 22, 2005. As is typical with a SIDS death, the medical examiner found nothing significant that could have caused Simon’s death. Yet his death was classified as “cause and manner of death unknown,” because he was sleeping in an adult bed.
“James is my youngest grandchild. He was born on Aug. 28, 2007 and became an angel on Jan. 12, 2008 at the age of 4 1/2 months. According to his autopsy, he died of SIDS. He died while taking his afternoon nap on a queen size pillow top bed and in the prone position at his babysitter’s. I questioned his babysitter if she was going to use the crib from her children that are 3 and 4 and she told me she gave the crib away but has a pack-n-play. James didn’t have a choice that he took his nap in an unsafe sleeping environment that had an increased risk factors for SIDS. We need laws to prevent this because education isn’t working.
“James’ babysitter knew the risks for SIDS but she chose to ignore them. Every baby is entitled to a safe sleeping environment. Beds are made for children and adults and not designed for a baby. There are safety recalls if a crib is found unsafe but there aren’t any laws of preventing a baby of sleeping in a bed that is hazardous and can cause suffocation.. There are laws requiring a baby, toddler and child to use a carseat and booster seat to lower the risk of a child dying in a car accident but not one of mandatory use of a crib or pack-n-play for a safe sleeping environment.
“All babies are entitled to the ABCs of infant safe sleep – Alone, on the Back, in a Crib so they have the chance to learn their regular ABC,s as a toddler. Safety caps are required on medicine, plastic bags have suffocation warnings, buckets have drowning warnings, doors are taken off refrigerators when they are trashed, lead was removed from paint and MADD has created laws against drunk driving to safe lives. We need laws to save the lives of our precious babies.
“My last memories of James is holding him the night before he died and trying to get him to say ‘DeeDee.’
“He would give me a big smile and make this gurgling sound. I will never have the chance to hear him say, “DeeDee.” When I babysat him on Saturdays and his mom, sister and brother would pick him up, the first thing my granddaughter when she entered my home was “James, James, where’s my James.” I miss hearing that and think of it every Saturday around the time they would pick him up. My life is never going to be the same. I think of James all the time and even wake up at night, just thinking of him. The following Sunday we were suppose to celebrate his baptism into the Catholic church but instead that Thursday we had a Mass of the Angels. James, I will always love it and our family circle will always have a missing link.”
– DeeDee, James’ grandma, Cathi Kelly
Last Updated: Aug 31, 2010
© Copyright 2010 First Candle - Site Designed by The Ocean Agency - Chicago Web Design