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Home > When a Baby has Died > Grief Resources > Online Support

ff General Grief Support

Facing Bereavement
Facing Bereavement was formed to offer a unique reference point on advice and guidance on facing and dealing with bereavement.

Centering Corporation
The Centering Corporation is a non-profit organization dedicated to providing education and resources for the bereaved. Today we have over 100 books and for children and adults, My Friends Emotion Dolls, a Memory Bag for children, five videos and caring cards, plus over 200 books and resources from other publishers. We continue to provide educational offerings and workshops for caregivers and families.

Crisis, Grief and Healing
A place men and women can browse to understand and honor the many different paths to heal strong emotions. Author, speaker, and psychotherapist Tom Golden, LCSW provides this page. He has a section on the different way men and women grieve.

GriefNet
GriefNet.org is an Internet community of persons dealing with grief, death, and major loss.

The Grief Watch
Site was created to provide bereavement resources, memorial products and links that can help you through your personal loss. It also serves as an excellent educational tool for all who travel down the road of grief.

f Infant Death

BabySteps
The BabySteps Children's Fund is a non-profit organization offering information and support to bereaved parents and children suffering the loss of a child. This site has a Bereavement Sharing Room, Remembrance Rooms for the Bereaved - places to put up memories of loved ones that are no longer with us, and Bereavement Resource Rooms. They have a really good list of Dos and Don’ts for what to say and not to say to someone who’s baby has died.

BirthStories.com
Compare notes with other parents-to-be and parents, read stories that are similar to yours or are very different than yours, share your own story and connect with others! This site Has more than 100 personal stories people have written about losing their first baby; and has more than 50 personal stories of people having their first baby after their loss (subsequent pregnancy after loss).

EriChad Grief Support
Grieving the loss of a child is one of life's most difficult experiences. You may think you'll never survive such pain. EriChad can't take away your pain, but we hope to validate it, hold your hand, and help you find life's rainbow.

The GRACE Group for Pregnancy & Infant Loss
For individuals who have experienced pregnancy or infant loss from early losses up to a year after a baby is born. This includes: ectopic, molar, miscarriage, stillbirth, neonatal death, SIDS and birth defects. This GRACE Group is moderated by The Missing GRACE Organization staff and volunteers.

Growth House
This is the Growth House web site area dealing with grief related to pregnancy and infant death. This award-winning web site is an international gateway to resources for life-threatening illness and end of life issues.

HAND (Helping After Neonatal Death)
Grief support and information for
parents and relatives of those who've lost a child before, during or after pregnancy, through stillborn, miscarriage, SIDS, or other causes. We are a non-profit organization based in Northern California and the Central Valley. Information for medical professionals is also provided.

Hygeia An Online Journal for Pregnancy and Neonatal Loss: A New Resource for Women's Health and Healing. Hygeia is devoted to the subject matter of grieving and loss as it pertains to pregnancy loss, genetic complications, miscarriage, neonatal loss and other life-threatening illnesses.

March of Dimes
Free bereavement materials for families that have experienced the loss of a baby before or shortly after birth.


MISS Foundation
The MISS Foundation is a 501(c)3, volunteer based organization committed to providing crisis support a
nd long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.

SHARE Pregnancy & Infant Loss Support Inc.
The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life.
(800) 821-6819

Three Little Angels Foundation
Founded after the premature delivery and death of our triplets, we work to help educate nurses and hospital staff from a parent's perspective on loss how to help us, and also give kits to families to help them make memories with their babies in the hospital before saying goodbye. We also have enormous resource listings on our website.

UNITE, Inc. Grief Support
They provide grief support services to families following the loss of their baby due to stillbirth, miscarriage, ectopic pregnancy and early infant death. They are located in the Philadelphia, PA area.

Fundacion Esperanza International
A non profit organization dedicated to helping Spanish-speaking bereaved families after the death of a child due to any cause. It is based in Mexico City, Mexico, though it provides its services to Spanish-speaking families through out the world.

Compassionate Friends National Office International
The Compassionate Friends, Inc. (TCF) is an international self-help, mutual assistance organization offering friendship, support and understanding to any parent who has experienced the death of a child, no matter what the age (infancy through adult) or cause of their death. There are chapters throughout the US as well as several other countries.

Babyloss.com UK
Babyloss is a UK-based resource that provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. The organization was established in 2000, and is run by a small team of volunteer administrators and forum moderators.

Stillbirth and Neonatal Death Society (SANDS) UK
SANDS is a self-help organization in the United Kingdom with a network of over 200 groups and contacts. Their purpose is to befriend and support bereaved parents and their families, who have suffered a stillbirth or neonatal death. Their concern is to help any bereaved parent who gets in touch and to improve services for all bereaved parents, their family and friends.

SANDS Australia Australia
SANDS Australia is a voluntary self-help organization comprised in the main, of parents who have experienced the death of a baby through miscarriage, stillbirth, or within days of birth.

f SIDS

SIDS Network, Inc.
The Sudden Infant Death Syndrome Network is a charitable, not-for-profit, voluntary agency. Donations are greatly appreciated and necessary for carrying out the work of our organization.The Sudden Infant Death Syndrome Network, Inc. dedicated to eliminate Sudden Infant Death Syndrome through the support of SIDS research projects, provide support for those who have been touched by the tragedy of Sudden Infant Death Syndrome and raise public awareness of Sudden Infant Death Syndrome through education.

SIDS Families
"This site is my personal work to make SIDS more bearable for the families whose child has died. Our family was devastated by SIDS in April 1999 when our 2 ½ month old son Jacob died. I began this website about 6 months after his death, to both give families a place to come together, and to commemorate the lives of the many babies who were victims of SIDS (Sudden Infant Death Syndrome)." -- Lydia Alves

SIDS Educational Services
English and Spanish versions of the SIDS & Infant Death Survival Guide and Dancing on the Moon.

SIDS & Kids Australia Australia
The National SIDS Council of Australia, trading as SIDS and Kids, is a high-profile and well-respected not-for-profit organisation that boasts an enviable history of success.  It comprises a National Office based in Melbourne with the National Research and Programs Unit largely based in Canberra, and nine Member Organisations (MOs) based in the Northern Territory, Queensland, New South Wales, Hunter Region of NSW, ACT Region, Victoria, Tasmania, South Australia and Western Australia. 

f Spanish-Speaking Support

Fundacion Esperanza International
A non profit organization dedicated to helping Spanish-speaking bereaved families after the death of a child due to any cause. It is based in Mexico City, Mexico, though it provides its services to Spanish-speaking families through out the world.

ff Loss of an Only Child

Alive Alone
An organization for the education and charitable purposes to benefit bereaved parents, whose only child or all children are deceased, by providing a self-help network and publications to promote communication and healing, to assist in resolving their grief, and a means to reinvest their lives for a positive future.

f Multiples

The Triplet Connection
The Triplet Connenction is an international "network of caring and sharing for multiple birth families" which was founded in 1983. We have worked with over 35,000 expectant parents of triplets and higher-order multiple births. For expectant parents of triplets or more, we have a fantastic packet of information which helps parents know exactly what they're up against, and specifically what they can do to enhance and promote the best possible outcomes to their pregnancies.

Twinless Twins Support Group
We provide support for twins and other multiples who have lost their twin due to death or estrangement at any age.  The unique aloneness we feel can best be understood by another twinless twin. You are not alone.

f For Grandparents

Alliance of Grandparents, A Support in Tragedy (AGAST) International
AGAST is an all volunteer organization dedicated to helping grandparents through the trauma, stress and grief after the loss of a grandchild. An internationally recognized non-profit (501(c)3) organization with peer contacts throughout the United States, and active grandparents in ten countries. Staffed entirely by volunteer grandparents, AGAST responds to "new" bereaved grandparents with information packets, personal contact, and remembrance cards.

f For Children

Brooke’s Place For Grieving Young People, Inc.
Indianapolis, IN support groups for young people and college age (age 3-20+) who have experienced the deat
h of a parent, grandparent, aunt, uncle, cousin, sibling, friend or loved one.

BabySteps
The BabySteps Children's Fund is a non-profit organization offering information and support to bereaved parents and children suffering the loss of a child. This site has a Bereavement Sharing Room, Remembrance Rooms for the Bereaved - places to put up memories of loved ones that are no longer with us, and Bereavement Resource Rooms. They have a really good list of Dos and Don’ts for what to say and not to say to someone who’s baby has died.

KIDSAID.com
KIDSAID.com is a safe place for kids to help each other deal with grief and loss. It's a place to deal with feelings in our e-mail support group, to share and view artwork and stories, and for parents and kids to ask questions and find answers. Companion site to GriefNet.org.

Winston's Wish UK
We provide support for bereaved children and young people up to the age of 18. Programs recognize how children experience grief. We therefore include time to have fun and for creative activities as well as time to focus on and work through more painful issues.

Childhood Bereavement Network UK
You can find details of open-access services for bereaved children in your area through this on-line Directory. The services in this Directory can be contacted for information, guidance and support by anyone caring for or working with a bereaved child or young person (i.e. a parent, teacher or GP) and, in most instances, by the bereaved child themselves.

f Christian Grief Support

Heavenly Treasure
A source of understanding, comfort and hope for anyone who has ever experienced grief.

Cristin’s Hope
This is a wonderful online support group for families who are mourning children from a loss of 20 or more week's gestation, stillbirth, neonatal death, SIDS or death of a child up to 1 year of age. Please note that it does not matter how long ago your loss was-the only requirement is the need of love & support of those who care.

Hannah's Prayer
Hannah's Prayer desires to provide Christian based support and encouragement to couples around the world who are struggling with the pain of "fertility challenges" including infertility or the loss of a child at any time from conception through early infancy.

HEALING HEARTS for Bereaved Parents
"Dedicated to providing grief support and services to parents whose child has died. The volunteers at HEALING HEARTS are here to help. We have known the pain that the death of a child brings. We have struggled with and worked on our grief and finally have made peace with that grief. Our purpose is to offer understanding, suggestions for coping, support, friendship, and most of all hope to all bereaved parents. Parents who have lost a child as a result of miscarriage or stillbirth are equally welcome as those who have lost children to illness, accident or violence."

Angel Babies Forever Loved
Angel Babies Forever Loved, Inc., is a non-profit 501(c)3 corporation established to support grieving parents of infants. Whether from miscarriage, stillbirth, neonatal loss, or SIDS, we all share in the loss of our babies.

Pain, Heartache, Hope
After Robin Bear went through the devastation of 6 miscarriages, she decided to create this website to help others like herself and her husband to cope. "I wanted this website to be a special place that a Mother, Father, Sister, Brother, or Grandparent could come to receive comfort." She offers a memorial page for people to write their loved one a note and has many e-mail support groups you can join.

Mommies Enduring Neonatal Death (M.E.N.D.)
M.E.N.D. is a non-profit corporation whose purpose is to reach out to those who have lost a child due to miscarriage, stillbirth or early infant death and offer a way to share experiences and information through meetings, the bi-monthly newsletter, and our Internet web site. They are based in Dallas/Fort worth and have chapters in NW Arkansas and Kansas .

Caleb Ministries
A Christian ministry offering help for women who have experienced infertility, miscarriage, stillbirth, early infant death, or are post-abortive.

American Association of Christian Counselors (AACC)
May be able to help you find a Christian counselor in your area.

Christian Association of Psychological Studies (CAPS)
May be able to help you find a Christian counselor in your area.

Heavenly Angels
A non-profit, Christian based organization that is dedicated to supporting grieving parents with their loss of their angels. Through mentor programs, Memorial Quilts, Memorials, and other well designed programs, we continue to help all who have suffered a loss.


Stepping Stones Discussion Forums
The participants of the forums are invited to post questions, share experiences, and offer helpful information and encouragement.

f Jewish Grief Support

National Council of Jewish Women
Pregnancy Loss Support Program (PLSP) for Miscarriage, Stillbirth, and Newborn Death. PLSP volunteers offer nationwide telephone counseling and New York metropolitan area support groups to those who have experienced miscarriage, stillbirth or newborn death as well as to those who are pregnant after a loss.

f Funeral/Burial Support

Heavenly Angels in Need
Provides help for babies in need. They work with volunteers to make things for babies who need to keep their heads warm and provide clothing for babies who passed away (burial gowns, etc.). They knit, crochet, sew, etc. Based in Oregon, but they provide baby clothing and memory boxes nationally.

f Congenital Heart Defects & Heart Disorders

Heartland Hearts Angels
This support group targets Midwest families who have lost a child to Congenital Heart Disease (CHD.) Members "meet" and "talk" and learn to cope with their losses. Support and encouragement is shared among friends who really understand. To honor our Angels lives, HHA participates in and coordinates events that increase CHD awareness and raise CHD research funds. HHA maintains a restricted membership policy to protect its members. Therefore, an introduction must be made to the list owner before membership is approved. If you are LIVING with CHD, please see our sister site, Heartland Hearts.

CHD-Fathers
This is a list for the fathers of children with Congenital Heart Defects.
Members: 25
Founded: Oct 30, 2002
Updated 5-10-04

CHD-UK UK
Congenital Heart Defects affect 1 in every 100 babies that are born. In order to bring Families, Friends and Sufferers together, this list has been set up for families and sufferers of CHD within the United Kingdom . Here, you are free to discuss medical matters, concerns and ask questions of one another. This group is not affiliated with any other support group.

HeartLine UK
A voluntary organization set up to offer help and support to children with heart disorders and their families regardless of how slight or severe the condition may be.

f Fatty Oxidation Disorders

Fatty Oxidation Disorders Family Support Group
The FOD Family Support Group's 'Communication Network' is intended to be used as
a resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for the sharing of ideas and concerns for those whose lives have been touched by a Fatty Oxidation Disorder.

f Organic Acidemia

Organic Acidemia Association
The Organic Acidemia Association is a volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.

f Information Links

American Academy of Pediatrics
www.aap.org 

Association of SIDS and Infant Mortality Program Professionals (ASIP)
(612) 813-6285
www.asip1.org 

Back to Sleep Campaign
(800) 505-CRIB
www.nichd.nih.gov/sids

Consumer Protection Safety Commission
www.cpsc.gov 

National Institutes of Child Health and Human Development
www.nih.gov

National SIDS Resource Center (NSRC)
(703) 821-8955 ext. 1249
www.sidscenter.org

PubMed (National Library of Medicine's online access)
www.ncbi.nlm.nih.gov/PubMed/ 

 

 



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Last Updated: 06/25/07



     


 
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